The courage and hope of Jaxon Strong

Anam Shahid Oct 10 2015
Untitled-1

Too often, rare cases of newborn babies come to the highlight. But in case of Jaxon, his case became a source of courage and hope for many. This newborn baby has gone viral on social media and has clenched the hearts of many with his reality.

Brandon Buell from Florida has learnt to cherish the difficulties and happiness that come with raising a child with severe disabilities. He has a toddler son, Jaxon, who was born with part of his skull and brain missing due to a rare condition called microhydranencephaly. What makes this little man so special is how he is so buoyant and has been inspiring people all across the globe through his Facebook page, Jaxon Strong.

“In the starting three weeks of Jaxon’s life, when we were still with him in the NICU and there was so much ambiguity, the doctors would constantly remind us for the worst and to be prepared to take Jaxon home simply for ‘comfort care’” Buell explained.

“The doctors truly did not anticipate for him to make it very long,” he continued. “Yet, every day that we were with Jaxon, even from the beginning, we were seeing a small flicker of hope, which has increased more by his presence in our lives, and it was that hope in him and the fight he always had that very naturally gave him the nickname of ‘Jaxon Strong’”.

Buell went ahead to talk about the way individuals respond to Jaxon and the folks out in the open and on the web, as his first birthday breakthrough immediately flowed crosswise over numerous publications in September and his Facebook page came to more than 200,000 likes.

“There are such a large number of things about Jaxon, our family, and his story that are totally misinterpreted. It’s perplexing to hear or see other individuals’ sentiments on our child that have never met him, that by one means or another know how he contemplates, how he acts, how he feels, the amount of what he does is intentional or spontaneous, how he is consistently in torment, and that we are self-centered parents for not deciding to have an abortion, and for having a Facebook and a GoFundMe page for him,” the father composed in his Facebook status.

“Most of the people never really understand the delight and the struggles that we experience behind closed doors with Jaxon,” Buell continued, responsively explaining his son’s condition, his family’s decision-making process while their baby was still in utero and the reasons behind the Facebook GoFundMe page, which was originated by a former colleague to keep Jaxon’s extended family knowledgeable of his progress.

Buell’s Facebook post has found itself to be shared over 600 times. The dad briefed on it, that he wrote the long piece to clear up the misconceptions he had ran into as Jaxon’s story went viral.

“I wanted to make sure, as his Dad, that we shared that Jaxon is still flourishing, developing and nurtured and is a very sweet and joyful boy that is full of love and distinguishes and can interrelate with people, toys, music, and books, too,” he said.

A few responses to Jaxon’s story have been adverse or critical, but Buell says the global reaction has been compassionate, awe-inspiring and surreal.

“Our main focus is keeping Jaxon pleased and at ease and doing all that we can to provide him the best life possible,” the dad said. “We know better than anyone else how precious his days are with us. We also keep being optimistic, and no matter what happens in the future, we know Jaxon is an addition of something of miraculous value and inspiration to this world. He has already touched so many lives, and we could not be more proud.”

Indeed, seeing this little bundle of joy will thaw any heart and force you to pray that this little strong guy keeps on fighting to see his better days to come.

Anam Shahid

Anam Shahid:

Anam has always been fond of writing and fiddling with words which allows her to not only express herself but pass them beyond. Graduating as a media student at ICMS, creativity comes to her pieces on its own.